Caregivers
As a caregiver, you make many sacrifices for your loved one. It is demanding both physically and emotionally, so it is important to make time for yourself.
We are here to help you navigate this role with confidence and provide the best possible support.
Understanding What the Person You Care For is Experiencing
Spasticity can be complex. The person you care for may have good days and difficult ones. You may notice muscle stiffness, spasms, or joint tightness that affects their movement or comfort.
The key to supporting someone with spasticity is to understand that what looks like “tightness” may actually involve multiple underlying issues, such as overactive reflexes, structural stiffness, or weakness.
Managing Daily Challenges
Your day-to-day support can make a significant difference in managing spasticity and improving your loved one’s quality of life. Here are some practical tips to help you provide effective care.
Build in Extra Time
Rushing through a task can increase muscle tone or spasms. Giving them more time to complete an activity promotes dignity and calm.
Prioritize Safety and Comfort
Use nonslip shoes, mobility aids, or adaptive equipment to prevent falls and strain. A physical or occupational therapist can offer home modifications and movement strategies.
Stay Flexible
Some days may be more difficult due to fatigue, cold weather, or stress. Having backup plans or alternate ways to accomplish tasks can ease tension.
Encourage Movement Without Pushing
Gentle, daily activity like stretching or seated leg lifts can prevent contractures and maintain flexibility. Listen to their cues and celebrate progress, no matter how small.
Keep a Log
A simple journal to track muscle tightness, mood changes, or treatment effects can help you and the medical team adjust care over time.
Be an advocate for yourself. Caregivers need care, too!
You cannot pour from an empty cup. Caregivers often set their own needs aside, but burnout and compassion fatigue are real. Here are ways to protect your mental and physical health:
01.
Take short breaks
Even 10 minutes alone with a cup of tea or walk outside can reset your energy.
02.
Ask for help
Involve family, friends, or community services. You do not have to do it all.
03.
Use respite care when needed
Some programs offer short-term support so you can rest or take care of other responsibilities.
04.
Talk to someone
Counseling, peer groups, or even online forums can offer validation and connection.
05.
Acknowledge your impact
Your role is powerful, and your care matters deeply.
You Are Part of the Team
At Spasticity and Movement Partners, we see caregivers as part of the care team. You know your family member’s needs, patterns, and goals better than anyone. We are here to support both of you through each step, setback, and success.
Need help preparing for an appointment, learning about a treatment? We are here to help.
Our Approach
The team at Spasticity and Movement Partners works with you to improve your movement and daily function by setting meaningful goals, providing tailored treatments, and guiding you through a recovery plan you can trust.
Focused
Outcomes
We set clear, achievable goals with you. Whether it's buttoning a shirt or walking to the mailbox, we use proven methods to turn your hopes into meaningful results.
Comprehensive
Support
We consider all aspects of your well-being, including emotional health, social connection, and the needs of those who help you day to day. Your progress is our mission.
Collaborative
Tracking
We measure progress that matters to you. Using tools like the Goal Attainment Scale-Light, we track real improvements and adjust care based on what works.
Continuous
Care
Recovery isn’t one-size-fits-all. We revisit goals often and adapt care as movement improves. Your plan grows with you, guided by a team that stays by your side.